More than 1,400 people have shared their health data with the Pancreatic Cancer Action Network (PanCAN) through its Patient Registry. The Patient Registry is a global online database created to look for patterns in treatments, side effect management and diagnostics.
Thanks to the contributions of participants, discoveries are being made that help patients and healthcare professionals, like the findings from PanCAN’s pancreatic enzymes research.
Here’s a snapshot of PanCAN’s quickly growing Patient Registry community and ways they’re contributing:
Patient health data and disease experiences provide researchers with crucial details for discoveries that can lead to improved treatments and better patient outcomes. The release of information that could identify a specific patient is not essential for this purpose. The Pancreatic Cancer Action Network recommends patients share their health data for research and educational purposes and provide consent for its use to trusted third parties.
Learn more about how you can help by joining the Patient Registry and sharing your experiences.